Oct 2021: NICE Guidelines Published

NICE has finally published the updated guidelines for ME after over two months of unnecessary delays - taking us forward to 2007.

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Oct 2021: The PACE Trial Debacle Articles

In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield research

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Oct 2021: Paper from Dr Ernie Hsieh et al - part of Quadram team

Comparison of PCR versus PCR-Free DNA Library Preparation for Characterising the Human Faecal Virome

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Oct 2021: Graham McPhee

The passing of Graham McPhee

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Sep 2021: Legitimising the Omnishambles II

A reply from the NICE CEO to IiMER's letters - and IiMER's response

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Sep 2021: Guidelines by Stealth

Nobody should legitimise further manipulation of guidelines for ME.

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Sep 2021: Time to Step Away?

It is time for people with ME to step away from this recent shambles of a process - unless everything can become open and transparent and accessible to all.

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Sep 2021: NICE and transparency

A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.

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Aug 2021: NICE Guidelines Development Debacle - And So It Continues

Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.

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Aug 2021: Fourteen Years

It has been fourteen years since NICE guidelines were published. A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.

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Aug 2021: Letter to NICE from Invest in ME Research

A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME

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July 2021: EMEA Webinar Roundtable video now available

EMEA has published the video of the recent webinar roundtable meeting with all presentations from the event.

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July 2021: Royal Parks Half Marathon

Places available in the 2021 Royal Parks Half Marathon.

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July 2021: IiMER Supporters Win £1,000

IiMER Supporters Win £1,000 in Movement for Good Award

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May 2021: ME Awareness Month

Awareness of Invest in ME Research Awareness Activities

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April 2021: Dr Ian Gibson

Sad news at the passing of Dr Ian Gibson

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April 2021: RESTORE-ME Clinical Trial Update

The RESTORE-ME clinical Trial Manager has supplied a brief update.

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April 2021: Fundraising for IiMER

Some of the fundraising for April.

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April 2021: Support ME Awareness

ME Awareness leaflets for the charity.

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March 2021: EMEA News A Roundtable of European Stakeholders and Policymakers

Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.

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March 2021: EMEA News Pan-European Survey

EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.

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February 2021: Another Great Biomedical Research Colloquium

The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic

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February 2021: iiMER Research

Research blog: Update on IiMER-funded Research

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February 2021: COVID-19 and Conference Week

Announcement on International ME Conference Week events and COVID-19 Pandemic in 2021

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January 2021: Anne Örtegren

Remembering Anne Örtegren

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Dec 2020: IiMER Response to NICE Draft Guidelines

Invest in ME Research assessed the NICE Draft Guidelines published in November 2020

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Dec 2020: NICE Accede to IiMER Request

Persistence Pays - NICE Accede to IiMER Request to Add Addendum to Guidelines - Sort Of

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Dec 2020: IiMER Christmas Fund Appeal

IiMER Christmas Fund Appeal - Help us raise awareness and funds for research into ME

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December 2020: Giving Tuesday

A short video for #GivingTuesday

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November 2020: Request to NICE to remove GET

The charity has repeated its request to NICE to remove GET as a recommendation immeidately

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November 2020: NICE Draft Updated Guidelines

The charity responds to the NICE press release regarding new draft guidelines

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September 2020: International ME Conference Week 2021

The charity announces details for International ME Conference Week 2021 in London

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Jul 2020: More on Funding Award for Research into ME

More on the award for Biomedical Research into ME in Norwich Research Park

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Jul 2020: Press Release: Major Award for Research into ME

UK Charity Awards Funding for Research into ME in Norwich Research Park

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Jul 2020: COVID-19, NICE and ME

Contradictions of NICE Policy Toward ME

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June 2020: IiMER Supporters Win £1,000

IiMER Supporters Win £1,000 in Movement for Good Award

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June 2020: European Research Development

European Research Development to make progress in ME

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March 2020: Covid-19

Covid-19 and ME

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March 2020: Covid-19

ME Conference Week 2020 News Update - Covid-19

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March 2020: Developing European Clinical Expertise for ME

An intent to develop further the European infrastructure for ME

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February 2020: News of new Clinicians Workshop

An International Clinicians Workshop is a new event to improve clinical knowledge.

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Jan 2020: ME Public Engagement Event - Norwich February 2020

Invest in ME Research and The Quadram Institute are arranging a Public Engagement Event in Norwich

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Dec 2019: £1/2 million pledged for ME research

UK Charity Pledges £500,000 for Research into ME in Norwich Research Park

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November 2019: WE and ME - A Community and ME

The charity has produced a simple guide to the issues in the community for patients with ME.

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October 2019: European ME Group Workshops

In order to continue to build these foundations two workshops have been organised by Invest in ME Research for November.

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September 2019: Update Meeting on IiMER Research Activities

IiMER are arranging a public meeting in Norwich during Norwich Science Festival Week to publicise some of the initiatives occurring.

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September 2019: IIMEC15 Chairman's Welcome Message

The chairman of IiMER welcomes the registration opening for the fifteenth International ME Conference in London in 2020.

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Autumn 2018: EMERG reformed

A new meeting of EMERG will take place in the autumn with new researchers and new ideas.

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August 2019: International ME Conference Week 2020

The charity announces details for International ME Conference Week 2020 in London

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August 2019: Royal Parks Half Marathon 2019

The line-up for #TEAMIiMER in the Royal Parks Half Marathon in London in October 2019.

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July 2019: IIMEC14 Anne Örtegren Memorial Lecture

The video of the IIMEC14 Anne Örtegren Memorial Lecture with Professor Stuart Bevan is now available.

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July 2019: IIMEC14 Pre-Conference Dinner Video Released

The video of the IIMEC14 Pre-Conference Dinner Presentation by Dr Ian Gibson is now available.

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June 2019: News from Norwich

Plans formulated with Invest in ME Research to make real progress in research into ME.

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June 2019: IiMER Supporters Win £3,000

IiMER Supporters Win £3,000 in #charityacclamation award

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June 2019: IiMER Supporters Win £1,000

IiMER Supporters Win £1,000 in Movement for Good Award

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May 2019: Spring in Washington

IiMER Comment: Representing IiMER Dr Daniel Vipond travels to Washington for the NIH events

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Apr 2019: Research Published

IiMER Comment: A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

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Apr 2019: Team-IiMER Royal Parks Half Marathon

Invest in ME Research participants in the Royal Parks Half Marathon in London in October.

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Apr 2019: IiMER Present at Stryn, Norway

Invest in ME Research recently provided a presentation for the Stryn, Norway conference on ME.

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Mar 2019: IiMER Sponsoring NIH Thinking the Future Lunch

Invest in ME Research created the Thinking the Future network to encourage young and early career researchers into ME.
We are taking it further as we work with USA National Institues of Health.

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March 2019: News from Denmark

Danish parliament separates ME G93.3 from Functional Disorders

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Feb 2019: Professor Jonas Blomberg

Sad news of a friend of IiMER and a friend of people with ME

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Jan 2019: IiMER Input to Parliamentary Debate

A 32 page document giving details of issues with ME for the forthcoming UK parliamentary debate

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Jan 2019: IiMER Establish European ME Clinicians Council (EMECC)

Invest in ME Research has arranged an inaugural meeting of leading European clinicians who are involved in treating people with Myalgic Encephalomyelitis. EMECC will play a role in Colloquium and Conference.

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Jan 2019: Perceptions of Care in Hospital’s ED

A very useful paper just published by Timbol and Baraniuk discusses Emergency Department visits by ME/CFS patients.

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Jan 2019: Anne Örtegren - A Year On

Remembering the influence of Anne Örtegren

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JRRG Donation

JOHN RICHARDSON RESEARCH GROUP DONATION

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Oct 2018: Science journal to withdraw CFS review

Science journal to withdraw chronic fatigue review amid patient activist complaints

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July 2019: IIMEC14 Pre-Conference Dinner Video Released

The video of the IIMEC14 Pre-Conference Dinner Presentation by Dr Ian Gibson is now available.

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2018 August IiMER Funding of PhD Studentship

IiMER Funding of research at UCL continues with the decision to fund the existing PhD Studentship

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2018 August Full Conference Report for IIMEC13

2018 The conference report from the IIMEC13 conference is available, online or in pdf format

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IiMER submission to the Scottish parliament

IiMER have made a submission to the Scottish parliament to provide information on services and research required for ME.

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2018 June Status of ME 2018

A summary of the status of ME in 2018 - prepared for the parliamentary debate on ME in this month

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2018 May Journal of IiMER Published

The twelfth year of publishing the Journal of IiMER at the IIMEC13 conference

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2018 May ME Awareness Month

ME Awareness Month - A Week in the Life of a Charity - An article on ME Awareness Month 2018

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2018 August New research paper

New paper from IiMER funded researchers at Centre of Excellence for ME

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2018 August The view of a child with ME

The view of a child with ME.

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2018 February Research News from Katharine Seton

“Defining autoimmune aspects of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)” An update to the study from Katharine.

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2018 February Anne Örtegren Memorial Lecture

Invest in ME Research are very pleased to announce a dedicated presentation slot to remember the work of Anne Örtegren

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2018 January Young/early career researcher conference in London . IiMER's attempts to build up the network of ME researchers for the future

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2018 February NICE Letters

IiMER reply to NICE and Professor Mark Baker and summarise information on the guidelines.

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January 2018 NICE

A Letter to Professor Mark Baker - Centre for Guidelines Director, NICE

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2018 January Removing Isolation from ME

Removing Isolation from Young People with ME Update

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2018 January Farewell to a Friend

Farewell to a Friend

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2017 November IIMEC12 pre-conference dinner

David Tuller's presentation was at the IIMEC12 pre-conference dinner on 2nd June 2017 in London.

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Award for Research

Solve ME/CFS Award for Research at #CofEforME

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NIH announcement validates Invest in ME Research's Centre of Excellence for ME Concept

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The SMILE Trial and Its Not-So-Happy Aftermath

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IiMER submitted its 8000+ word response to the NICE Guidelines for CFS/ME Consultation Review

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A new primer for ME/CFS Diagnosis and Management in Young People

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Now in its eighth year we wish to introduce another level to the Biomedical Research into ME Colloquium in 2018.

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“Defining autoimmune aspects of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)”
An opportunity to interact with IiMER-funded PhD students.

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Solve ME/CFS has announced the award of a grant for research at the Centre of Excellence for ME.


The award allows continuation and expansion of the work started by Invest in ME Research funded researchers and complements ongoing research at the Centre.

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Good news of new donation for the Centre of Excellence for ME which is helping to enhance the foundation of biomedical research into ME that has been established.

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For the UK Centre of Excellence for ME we have now raised £200,000 in total for past, current and planned projects based at the UK Centre of Excellence hub in Norwich Research Park.

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IiMER funded PhD students Katharine and Fiona recently visited Berlin to present about ME.

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We are very pleased and honoured to announce that Anne Cooke, Emeritus Professor of Immunobiology at University of Cambridge, has agreed to join the advisory board of Invest in ME Research.

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Highlighting the Scandal of Past Treatment of ME - Cause and Effect. We release Kjersti Krisner's keynote speech from 2016.

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On #InternationalMEAwarenessDay and for the UK Centre of Excellence for ME we have now raised £188,000 in total for past, current and planned projects relating to gut microbiota, and other research being developed at the UK Centre of Excellence for ME.

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For ELEVEN years Invest in ME Research has been organising international biomedical research conferences in Westminster, London. Our choice of venue for #IIMEC12 reflects our commitment to patients, families, carers, researchers and healthcare staff.

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A new book covering the truths and untruths about ME - and the political machinations that have been, and are preventing proper science from being performed to resolve this disease.

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Among the amazing efforts being made by supporters to raise funds for the UK Centre of Excellence for ME and for the biomedical research being carried out and planned - is this from Mike Harley.
Mike is running 28 European marathons in five years - supporting our five year plan to develop the Centre of Excellence and carry out the UK rituximab trial.
Mike's efforts are described in the link below -"Running 28 European Marathons - in the name of Friendship"

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For Invest in ME Research Fane Mensah writes an article on collaboration and student participation in research into ME.

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Thanks to adonation from Freemasons in Norwich and a Ladies Sunday Lunch raffle we have now raised £181,000 in total for past, current and planned projects at the Centre of Excellence for ME.

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Media interviews carried out by the BBC Look East team demonstrated that other media coverage of ME does not have to consist of misleading and incorrect information.

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The new book on ME by Dr Ian Gibson and Elaine Sherrifs is going through its final proof-readings.

Norwich based Ian Gibson is former MP for Norwich North, former dean of biology at the University of East Anglia and was chair of the science and technology select committee from 2001-2005.

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Dr Øystein Fluge from the Haukeland University Hospital in Bergen, Norway will be giving a public presentation on his team's research. The meeting will be in Norwich on 26th January 2017.

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Today we reach a landmark day in our B-cell/rituximab research project where the total in donations and pledges has reached £1/2 million.

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The Haukeland University Hospital team of Dr Oystein Fluge and Professor Olav Mella Team will visit the Norwich Centre as the collaboration between centres continues.

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We are pleased to announce that the charity has been successful with its Big Lottery Awards for All grant to help promote the Centre of Excellence for ME.

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Daniel L. Peterson Medicine Doktor, Simmaron Research, Sierra Internal Medicine, Incline Village, NV USA.

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A Role for the Intestinal Microbiota and Virome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)?

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Ahead of our upcoming 11th International ME Conference we have a short update here about progress with the project.

We recently met with IFR/UEA researchers to discuss progress of the gut microbiota project.

PhD student Daniel Vipond and Dr Navena Navaneetharaja have been busy collecting samples from severely ill house bound patients - sometimes getting up at 2am! to set out on their journeys on some days. They have sampled 11 severely ill patients so far which is an admirable result as these patients are not easy to access and they have only been collecting these samples for a relatively short time.

Two new PhD students will start in September/October in Norwich Research Park.

One is funded by IiME and another one is a self-funding student who wishes to be part of the research and who is experienced in laboratory work. This student was specifically interested in participating in the ME research which has been started at UEA/IFR.

This underlines our strategy of creating the Centre of Excellence for ME.

A third student position funded by IiME is being advertised later in the summer. Invest in ME are also aiming to keep the MedRes studentships going as these have turned out to be very successful in many ways. These highly motivated medical students are not only very helpful for the research projects but they also become better ME educated doctors as well as influencing their student peers.

Some even stay involved in ME research!

The continuing work and atmosphere at NRP is very encouraging.

Professor Tom Wileman will discuss the project at our forthcoming IIMEC11 International ME Conference on 3rd June in London.

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NIVEL study: CBT - This Recommended Treatment of ME/CFS is Often Detrimental to ME Patients

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The PhD and intercalating medical students involved in the IiME funded UK gut microbiota research participated in a panel session at the recent 10th International ME Conference in London on 29th May.

Bharat Harbham, Daniel Vipond and Navena Navaenanarathrama answered questions from the audience about their research and their impressions of ME.

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Prof. Simon Carding, Leader of the Gut Health and Food Safety Research Programme, Institute of Food Research and Norwich Medical School at the University of East Anglia, was interviewed by BBC journalist Susie Fowler-Watt and describes the project which Invest in ME is funding.

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Crowdsourcing raises vital funds for ME research into 'leaky gut syndrome'

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The initial target was to raise £100,000 for the foundation project and begin a research strategy which we could build on and initiate other biomedical research projects which will benefit patients and augment an international database of valid data.
Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK centre of excellence for translational biomedical ME research, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.

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IiME have distributed GP Information packs to Scotland

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2009 Input to the Meetings of the Forward-ME Group

All of the submissions made by the charity to that group before we were omitted

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2005 Professor Malcolm Hooper - Engaging with ME

From Invest in ME articles
A summary of the lecture by Professor Hooper organised by Invest in ME in 2005

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Nov 2006 - IiME Response to NICE Draft Guidelines

IiME have published a response to the NICE Draft Guidelines for CFS/ME. Our response - PDF here /Nice pro-forma here.
Your own comments page here
Margaret Williams' comments here

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Last Update January 2020