May 2022: ME Awareness Month

ME awareness month message from IiMER

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April 2022: Fundraising for IiMER

Some of the efforts being made by supporters during recent months.

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April 2022: iiMER Research

Research blog: Update on IiMER-funded Research

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April 2022: Dr Ian Gibson

It is one year since Dr Ian Gibson passed away.

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March 2022: Marathon Man - Challenge Completed

Mike Harley has entered the final stage of his marathon adventure - supporting the charity and people with ME

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March 2022: EMEA webinar roundtable II 8 April 2022 - ME/CFS in Europe

A virtual roundtable organised by the European ME Alliance and the European Federation of Neurological Alliances has been arranged for 8 April 2022 - to discuss issues, educate and find solutions.

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March 2022: Another Great Biomedical Research Colloquium

The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic and the situation in Europe.
However, the agenda is filling up with new ideas and news of research from around the world.
This year a theme throught the Colloquium is -
ME and Long Covid: Emerging insights in mechanisms and complexity of post-viral fatigue.
Once again the European ME Research Group (EMERG) will be leading the agenda.

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January 2022: Anne Örtegren

Remembering Anne Örtegren 2022 - Has Anything Changed?

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Dec 2021: Christmas Appeal

Our Christmas Appeal and Advent Calendar for 2021 - Happy Christmas

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Oct 2021: NICE Guidelines Published

NICE has finally published the updated guidelines for ME after over two months of unnecessary delays - taking us forward to 2007.

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Oct 2021: The PACE Trial Debacle Articles

In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield research

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Oct 2021: Paper from Dr Ernie Hsieh et al - part of Quadram team

Comparison of PCR versus PCR-Free DNA Library Preparation for Characterising the Human Faecal Virome

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Oct 2021: Graham McPhee

The passing of Graham McPhee

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Sep 2021: Legitimising the Omnishambles II

A reply from the NICE CEO to IiMER's letters - and IiMER's response

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Sep 2021: Guidelines by Stealth

Nobody should legitimise further manipulation of guidelines for ME.

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Sep 2021: Time to Step Away?

It is time for people with ME to step away from this recent shambles of a process - unless everything can become open and transparent and accessible to all.

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Sep 2021: NICE and transparency

A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.

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Aug 2021: NICE Guidelines Development Debacle - And So It Continues

Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.

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Aug 2021: Fourteen Years

It has been fourteen years since NICE guidelines were published. A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.

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Aug 2021: Letter to NICE from Invest in ME Research

A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME

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July 2021: EMEA Webinar Roundtable video now available

EMEA has published the video of the recent webinar roundtable meeting with all presentations from the event.

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July 2021: Royal Parks Half Marathon

Places available in the 2021 Royal Parks Half Marathon.

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July 2021: IiMER Supporters Win £1,000

IiMER Supporters Win £1,000 in Movement for Good Award

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May 2021: ME Awareness Month

Awareness of Invest in ME Research Awareness Activities

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April 2021: Dr Ian Gibson

Sad news at the passing of Dr Ian Gibson

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April 2021: RESTORE-ME Clinical Trial Update

The RESTORE-ME clinical Trial Manager has supplied a brief update.

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April 2021: Fundraising for IiMER

Some of the fundraising for April.

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April 2021: Support ME Awareness

ME Awareness leaflets for the charity.

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March 2021: EMEA News A Roundtable of European Stakeholders and Policymakers

Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.

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March 2021: EMEA News Pan-European Survey

EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.

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February 2021: Another Great Biomedical Research Colloquium

The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic

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February 2021: iiMER Research

Research blog: Update on IiMER-funded Research

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February 2021: COVID-19 and Conference Week

Announcement on International ME Conference Week events and COVID-19 Pandemic in 2021

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January 2021: Anne Örtegren

Remembering Anne Örtegren

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Dec 2020: IiMER Response to NICE Draft Guidelines

Invest in ME Research assessed the NICE Draft Guidelines published in November 2020

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Dec 2020: NICE Accede to IiMER Request

Persistence Pays - NICE Accede to IiMER Request to Add Addendum to Guidelines - Sort Of

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Dec 2020: IiMER Christmas Fund Appeal

IiMER Christmas Fund Appeal - Help us raise awareness and funds for research into ME

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December 2020: Giving Tuesday

A short video for #GivingTuesday

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November 2020: Request to NICE to remove GET

The charity has repeated its request to NICE to remove GET as a recommendation immeidately

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November 2020: NICE Draft Updated Guidelines

The charity responds to the NICE press release regarding new draft guidelines

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September 2020: International ME Conference Week 2021

The charity announces details for International ME Conference Week 2021 in London

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Jul 2020: More on Funding Award for Research into ME

More on the award for Biomedical Research into ME in Norwich Research Park

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Jul 2020: Press Release: Major Award for Research into ME

UK Charity Awards Funding for Research into ME in Norwich Research Park

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Jul 2020: COVID-19, NICE and ME

Contradictions of NICE Policy Toward ME

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June 2020: IiMER Supporters Win £1,000

IiMER Supporters Win £1,000 in Movement for Good Award

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June 2020: European Research Development

European Research Development to make progress in ME

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March 2020: Covid-19

Covid-19 and ME

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March 2020: Covid-19

ME Conference Week 2020 News Update - Covid-19

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March 2020: Developing European Clinical Expertise for ME

An intent to develop further the European infrastructure for ME

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February 2020: News of new Clinicians Workshop

An International Clinicians Workshop is a new event to improve clinical knowledge.

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Jan 2020: ME Public Engagement Event - Norwich February 2020

Invest in ME Research and The Quadram Institute are arranging a Public Engagement Event in Norwich

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Last Update January 2020