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The ME/CFS Conference
aims to educate and provide current information to healthcare professionals
(GPs, paediatricians, nurses etc.), researchers and patient groups/patients and
to educate the media and politicians who are involved in establishing
news or debate regarding healthcare.
Following the successful
IiME International ME/CFS conference in
London in May 2008 which dealt with Sub Grouping and Treatments of
ME/CFS we now look at the subjects of -
We will
include management and treatment of severe ME/CFS - which many consider
to be the area where research will uncover treatments and cures for the
various sub groups of this illness.
The
series of lectures will focus on treatments,
care and medical information and research and will
provide a broad range of valuable information for all.
The
conference will provide a chance to hear the latest news on
ME/CFS from the most prominent speakers within the ME community -
in ME Awareness Month 2009.
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Conference Agenda
Details of lectures (note these may change).
Start |
Presenter |
Presentation |
07.45 |
Registration & Media interviews |
08.55 |
IiME |
Welcome to the Conference |
09.00 |
Professor Jonathan Brostoff MA DM DSc(Med) FRCP
FRCPath FIBiol |
Conference Chairman |
09:05 |
Mrs Annette Whittemore |
Key Note Speech |
09:35 |
Professor Garth Nicolson PhD |
Similar Infections Found in ME/CFS and
Neurodegenerative and Neurobehavioral Diseases |
10:25 |
Professor Harald Nyland
MD, PhD |
Epidemics & ME: Lessons from the Giardia
epidemic in Norway |
10.55 |
Break |
11:15 |
Dr. Jonathan Kerr MD, PhD
|
Severely-affected Sub Groups of ME/CFS |
11:45 |
Dr. Barbara Baumgarten
MD |
Services for correct diagnosis and
Management/Treatment of ME |
12:15 |
Discussion |
The
ME Clinic |
12.30 |
Lunch |
13:25 |
Professor Kenny de Meirleir MD, PhD |
Research on Extremely Debilitated M.E.
Patients Reveals the True Nature of the Disorder |
14:10 |
Dr. Dan Peterson
MD |
Treatment Regimes for the Most
Severe Cases |
14:55 |
Professor Basant Puri |
Neuro-Imaging of ME
Patients |
15.10 |
Coffee/tea Break |
15:30 |
Dr John Chia
MD |
Diagnosis and Treatment of chronic enterovirus infection
associated with ME/CFS |
16:15 |
Dr. Judy Mikovits MD |
Research and Diagnosis of difficult and
complex medical cases of ME |
17:00 |
Professor Jonathan Brostoff + Presenters |
Plenary Session |
17.30 |
Adjourn |
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Conference Speakers
Invest in
ME are pleased to announce the following presenters at the conference -
Annette Whittemore |
Founder and President of the
Whittemore Peterson Institute for Neuroimmune
Diseases,
Reno, Nevada, USA. The Institute will be built on the medical
campus of the University of Nevada. Its mission is to serve those
with complex neuro-immune diseases such as ME/CFS, viral induced
central nervous system dysfunction and fibromyalgia.
Annette Whittemore graduated in Elementary and Special Education at
the University of Nevada and taught children with neuro-cognitive
deficits, such as those found in autism, ADD, and learning
disabilities. As the director of the current operations at the
Institute Annette supports the basic and clinical research program,
and actively recruits physicians and other support personnel for the
Institute. |
Dr.
Barbara Baumgarten |
Head
of the recently opened ME-centre at Ullevål University Hospital,
Oslo, Norway.
Dr
Baumgarten has seen ME patients in her private practice since 1997
and has had responsibility for specialised medical services for ME
patients. Dr Baumgarten is a board member of the Oslo branch of the
Norwegian Medical Association. The ME Centre in Oslo is unique in
that patients have been closely involved in its formation. |
Dr. Jonathan Kerr |
Sir Joseph Hotung Senior Lecturer in
Inflammation,
St George's University of London. Dr. Kerr
is now the principal investigator in a
programme of research in ME/CFS. This involves development of a diagnostic test
using mass spectrometry, analysis of human and viral gene expression in the
white blood cells, and clinical trials of immunomodulatory drugs. He has
recently published research identifying distinct subtypes in patients with
ME/CFS. |
Professor Kenny De Meirleir |
Director of the Human Performance Laboratory and Fatigue Clinic,
The Vrije
Universiteit Brussels, Belgium.
Co
author of the book 'Chronic
Fatigue Syndrome: A Biological Approach' and his
published works cover many aspects of ME/CFS. Current research
involves the gut and ME/CFS. He has seen over 12000 ME/CFS patients
and we are hoping of exciting new research findings to be presented
at the conference. |
Dr. John Chia |
Dr Chia is
an
infectious disease specialist practicing in Torrance, California,
USA and
has published research recently (Chronic fatigue syndrome
associated with chronic enterovirus infection of the stomach)
on the role of enteroviruses in the aetiolgy of ME/CFS – an area
which has been implicated as one of the causes by a number of
studies. There
are more than 70 different types of enteroviruses that can affect
the central nervous system, heart and muscles, all of which is
consistent with the symptoms of ME/CFS. By analyzing samples of
stomach tissue from 165 patients with CFS, Dr. Chia's team
discovered that 82% of these individuals had high levels of
enteroviruses in their digestive systems. Dr Chia's research may
result in the development of antiviral drugs to treat the
debilitating symptoms of ME/CFS. |
Professor Garth Nicolson |
President, Chief Scientific Officer and a Research Professor at the
Institute for Molecular Medicine, Laguna Beach, California, USA.
Conjoint Professor, Faculty of Science and Technology, University of
Newcastle, Australia. Professor of Integrative Medicine, Capital
University of Integrative Medicine, Washington DC.
Professor Nicolson has published over 550 papers, three of them
current content citation classics, and his recent publications
include:
Chronic Fatigue Syndrome patients subsequently diagnosed with Lyme
Disease Borrelia burgdorferi: evidence for Mycoplasma
species co-infections;
Chronic infections in neurodegenerative and neurobehavioral
diseases; New emerging infections: Their development, testing and
resulting disease. |
Professor Harald Nyland |
Department of Neurology, Haukeland University Hospital, Bergen,
Norway.
Professor Nyland has seen several thousand ME patients, among them
many severely ill. His recent research involves an ME/CFS Epidemic
Following a Giardia lamblia Infection in Bergen. Professor Nyland
was knighted in 2007 for his services of over 30 years for MS
patients in Norway. |
Professor Jonathan Brostoff
(conference
chair) |
Jonathan
Brostoff is Senior Research Fellow and Professor Emeritus of Allergy and
Environmental Health at Kings College, London. He was the Foundation
Professor of Allergy and Environmental Health and Director of the Centre for
Allergy Research at University College London. Whilst at University College
Hospital he was Physician in charge of the Allergy Clinic.
He is recognized as a leading international authority on food allergy and
intolerance. Professor Brostoff was involved in one of the few, and
much-quoted Spect scan studies of ME patients [Brainstem perfusion is
impaired in patients with chronic fatigue syndrome. Costa DC, Tannock C and
Brostoff J. Quarterly Journal of Medicine 1995:88:767 773]
|
Dr. Daniel Peterson |
Dr Dan Peterson is Medical
Director, Whittemore Peterson Institute, Reno, Nevada, USA.
With
over 25 years of medical practice, Dr Daniel L. Peterson has become
a sought-after internist for diagnosing difficult and complex
medical cases. When several patients in Incline Village became ill
with symptoms that resembled persistent mononucleosis, Daniel
Peterson was one of the first physicians to recognize an outbreak of
what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a
pioneering physician and researcher in understanding the biological
characteristics and methods for diagnosing, managing and treating
ME/CFS. He has also performed major studies of Ampligen as a
treatment for ME/CFS, and studying the possible role of human herpes
virus 6 (HHV-6) in CFS patients. |
Dr.
Judy Mikovits |
Dr. Mikovits
obtained her Ph.D. in Biochemistry and Molecular Biology from George
Washington University. She is Research Director at the
Whittemore Peterson Nevada CFS centre for Neuro-Immune disorders
and has
co-authored over 40 peer reviewed publications that address
fundamental issues of viral pathogenesis, hematopoiesis and cytokine
biology. |
Professor Basant Puri |
Professor and Consultant, MRC Clinical Sciences Centre, Hammersmith Hospital,
Imperial College School of Medicine
Basant Puri is a Consultant and Professor at Hammersmith
Hospital in London. He is also head of the Lipid Neuroscience Group at
Imperial College and is the author of over 130 peer-reviewed medical and
scientific papers and over 30 books. |
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Conference Format
The conference
consists of lectures followed by a short question/answer session. At the end
of the day a plenary session will allow more questions to be posed to the
panel of experts.
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CPD Accreditation
Maximum 6 points CPD accreditation has
been given to the conference by the Royal College of Physicians.
This is
available for those purchasing the professional category tickets (including
sponsored professionals).
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Register
By clicking the buttons
at the top of the page you will be able to branch to the specific area of interest
regarding the conference. There are both downloadable and online registration forms and
details of the presenters.
Please note -
this conference is a
TICKET-ONLY event. Tickets must be purchased and received before
the event.
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