IIMEC2 - Building a Future for Research into ME
The IiME ME/CFS Conference for 2007- #IIMEC2 - was our second annual international conference for ME and was held on over two days - 1st and 2nd May, 2007 in London and began ME Awareness Month 2007. The 2nd International ME/CFS Conference 2007 was attended by presenters and delegates from 12 countries, from Europe, USA, Canada and even South Korea.
The charity decided to make this a two-day conference - with themes for professionals on one day and patients on the second day.
This also allowed increased networking opportunities and increase the potential for one of the charity's main objectives - international collaboration between researchers.
The conference carried full CPD-accreditation.
1st May - ME Awareness & Support Conference Day consisted of a series of group presentations and was designed for healthcare professionals, people with ME and their carers and ME Support groups with a view to working together.
2nd May - Professionals Conference Day was the formal presentation day for healthcare professionals - doctors, paediatricians, nurses, researchers, students etc. as well as people with ME and their carers and ME support groups.
The ME/CFS Conference aimed to educate and provide current information to healthcare professionals (GPs, paediatricians, nurses) and researchers and to educate the media and politicians involved in establishing news or debate regarding healthcare.
The series of lectures focused on treatments, care and medical information and research and provided a broad range of valuable information for all.
The conference provided a chance to hear the latest news on ME from the most prominent speakers within the ME community - in ME Awareness Month 2007.
We feel that good and useful connections were made - researchers discussing collaboration; ME Support groups discussing joint ventures and campaigns; carers and parents sharing experiences.
Invest in ME would like to thank all those who took part in the conference for contributing to the wonderful atmosphere which was present during both days of the conference. Many travelled from afar and the conference was a success because of the character and of all. The atmosphere at the conference showed the positive and forward-looking side of the ME community around the world.
We believe that everyone left not only with an enhanced knowledge gained from the conference but also with renewed hope for the future treatment and possible cure for myalgic encephalomyelitis. The breadth of knowledge, science and experience regarding ME, as discussed and presented at the conference, is not only impressive but also exciting.
We hope that the many contacts which were established at the conference will continue and we hope to remain in contact with as many of you as possible. To see renowned experts on ME discussing with each other and forming or re-enforcing collaborative efforts was reward enough for hosting the conference. To turn into reality our efforts to form a world alliance of campaigning ME Support organisations was also justification for the conference.
And then there were the presentations from our distinguished speakers. An amazing amount of knowledge was presented showing the organic nature of myalgic encephalomyelitis. Invest in ME published its first Journal of IiME, which also served as a conference brochure. Invest in ME produced a DVD of the conference but later the videos of the presentations have been made available here online.
Conference Presentations from IIMEC2
Norman Lamb MP
Member of UK Parliament for Norwich NorthKynote Speech
Norman Lamb MP - MP for Norwich North
Norman Lamb entered Parliament at his second attempt in 2001, gaining this seat from the Conservatives.
Norman Lamb read law at the University of Leicester. He worked for Norwich City Council as a senior assistant solicitor before joining Norfolk solicitors Steele and Co., where he became a partner and head of the firm's specialist Employment Unit.
He worked for a year as a Parliamentary Assistant for Greville Janner, QC, MP.
He was a member of Norwich City Council 1987-91, leading the Liberal Democrats for the last two years of his term.
He has built a strong reputation in Norfolk as a campaigner for improved health services. He has been a critic of cuts in bed numbers and has highlighted the resulting unacceptable level of cancelled operations.
As an MP his work on local issues includes adjournment debates on: orthopaedic waiting times in Norfolk; the lack of school transport services in North Norfolk; police funding in Norfolk; funding for Further Education Colleges; the provision of care for people with dementia; and coastal erosion. Norman has been Lib Dem Deputy Spokesperson for International Development (2001-02), a Treasury spokesman (2002-03), PPS (Parliamentary Private Secretary) to Charles Kennedy (2003-05) and Shadow Trade and Industry Secretary (2005-06). He was a principal author of the party's policy on Royal Mail. From March to December 2006, Norman was Chief of Staff for party leader Sir Menzies Campbell.
In December 2006 he was appointed Liberal Democrat Shadow Health Secretary. He has a particular interest in Africa: he has led Adjournment Debates on the HIV/AIDS crisis facing Africa and Asia, the controversial sale of military air traffic control system in Tanzania and the situation in the Great Lakes region of Africa.
Dr Derek Pheby
Dr Derek PhebyCase Study - Epidemiology of ME/CFS
Dr. Derek Pheby - Senior Fellow, University of Hull
Epidemiological Research and the ME Observatory plus Factors involved in the development of Severe ME
Dr Jonathan Kerr
Dr Jonathan KerrVIRAL AND HUMAN GENE EXPRESSION, DEVELOPMENT OF DIAGNOSTIC TEST, NEWS OF CLINICAL TRIALS
Dr Jonathan Kerr
Jonathan Kerr qualified in medicine from Queen’s University of Belfast (1987), and completed training as a medical microbiologist (1995). He has worked as a microbiologist in Belfast, Manchester and London, taking up post as a Consultant Senior Lecturer in Microbiology at Royal Brompton Hospital / Imperial College in June 2001, and then Sir Joseph Hotung Clinical Senior Lecturer in Inflammation at St George’s University of London in 2005. His interest in Chronic Fatigue Syndrome (CFS) began during a study of the consequences of parvovirus B19 infection, when he showed that a percentage of infected cases developed CFS which persisted for several years. He is now the principal investigator in a programme of research in CFS. This involves development of a diagnostic test using mass spectrometry, analysis of human and viral gene expression in the white blood cells, and clinical trials of immunomodulatory drugs. Dr. Jonathan Kerr and colleagues at St. George’s University of London reported in the July 27, 2005 issue of the Journal of Clinical Pathology that a preliminary study of 25 CFS patients and 25 matched healthy controls revealed abnormalities in 35 of 9,522 genes analyzed using microarray technology. Polymerase chain reaction studies showed the same results for 16 of these genes. The study, and its results, raises some important questions. The first of which pertains to the need for funding of microbiological CFS research. He leads a group of 5 scientists at St George's.
His research on gene expression has resulted in several published papers – including evidence of 7 distinct sub types of ME/CFS.
Dr. Kerr also runs a ME/CFS research program. He studied the consequences of parvovirus B19 infection in ME/CFS and showed that a percentage of infected cases developed ME/CFS which persisted for several years. He has reported 88 human genes whose dysregulation is associated with CFS, and which can be used to derive genomic CFS subtypes which have marked differences in clinical phenotype and severity.
Other Links
Professor Kenny De Meirleir
Director of the Human Performance Laboratory and Fatigue Clinic, Vrije Universiteit BrusselsTREATMENTS FOR ME/CFS INTEGRATIVE & COMPLIMENTARY MEDICINE
Professor De Meirleir is a professor of Physiology and Internal Medicine at Free University of Brussels in Belgium. He is co-editor of Chronic Fatigue Syndrome: A Biological Approach, co-editor of the Journal of Chronic Fatigue Syndrome, and reviewer for more than 10 other medical journals. Dr. De Meirleir was one of four international experts on the panel that developed the Canadian Consensus Document for ME/CFS. He assesses/treats 3,000 to 4,000 ME/CFS patients annually. Professor Kenny L. De Meirleir, MD received his medical degree at Vrije Universiteit Brussel, Magna cum laude. His research activities in Chronic Fatigue date back to 1990. His other research activities in exercise physiology, metabolism and endocrinology have led to the Solvay Prize and the NATO research award. He is director of the Human Performance Laboratory and Fatigue Clinic at the Vrije Universiteit Brussel, as well as consultant in the Division of Cardiology and director of the cardiac rehabilitation program at Vrijie Universiteit Brussel.
A Model ME/CFS Clinic - The CFS Clinic
Annette WhittemoreWhittemore-Peterson Institute, Nevada, USA
Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Founder and President of the Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA.
The Institute is located on the medical campus of the University of Nevada.
Its mission is to serve those with complex neuro-immune diseases such as ME/CFS,
viral induced central nervous system dysfunction and fibromyalgia. Annette Whittemore
graduated in Elementary and Special Education at the University of Nevada and taught
children with neuro-cognitive deficits, such as those found in autism, ADD, and learning
disabilities. As the president and director of the current operations at the Institute
Annette supports the basic and clinical research program, and actively recruits physicians
and other support personnel for the Institute.
Dr Dan Peterson
Biomedical Research into MEWhittemore-Peterson Institute, Nevada, USA
Dr Daniel L. Peterson, Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Daniel L. Peterson, M.D., is an internist in Incline Village, Nevada and recognized medical expert on CFS/ME. Dr. Peterson is founder of Simmaron Research, and serves on its Scientific Advisory Board. Dr. Peterson has devoted 25 years of his clinical career to diagnosing and caring for patients with CFS/ME and related neuroimmune disorders, and collaborating with researchers to better understand the illness. Dr. Petersons repository of more than 1,000 patient biological samples and records is a rich resource for research studies. His experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
With over 25 years of medical practice, Dr Daniel L. Peterson has become a sought-after internist for diagnosing difficult and complex medical cases.
When several patients in Incline Village became ill with symptoms that resembled persistent mononucleosis, Daniel Peterson was one of the first physicians to recognize an outbreak of what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a pioneering physician and researcher in understanding the biological characteristics and methods for diagnosing, managing and treating ME/CFS. He has also performed major studies of Ampligen as a treatment for ME/CFS, and studying the possible role of human herpes virus 6 (HHV-6) in CFS patients.
Dr. Peterson's experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
Other Links
Dr Vance Spence
Biomedical Research into ME/CFS: Where does it go from hereDr. Vance Spence - Honorary Senior Research Fellow in the Department of Medicine,University of Dundee Medical School, UK
Dr. Spence is a graduate of the Universities of London and Dundee. He was a Principal Clinical Scientist responsible for vascular services and research and, in 1997, he rejoined the University of Dundee Medical School as Honorary Senior Research Fellow in the Department of Medicine.
Professor Malcolm Hooper
Emeritus Professor Sunderland UniversityDay 1 - Summary of “KEY FINDINGS” of Past Biomedical Research
Professor Malcolm Hooper
Professor Malcolm Hooper is Emeritus Professor of Medicinal Chemistry, University of Sunderland and chaired many of the initial Invest in ME Research International ME Conferences.
Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients' rights.
Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews - interviews with conference speakers at the Invest in ME Conference.
Professor Hooper graduated from University of London and had held appointments at Sunderland Technical College, Sunderland Polytechnic and the University of Sunderland,
where he was made Emeritus Professor of Medicinal Chemistry in 1993.
He has served at many UK universities as well as in India and Tanzania.
He has inaugurated links with Indian research institutions and universities and celebrated 25 years of productive
and on-going links which have,
particularly, involved the design and development of new drugs for tropical diseases and an exploration of natural
products associated with Ayurvedic medicine.
He has published some 50 papers in peer-reviewed journals in the field of medicinal chemistry together with major
reviews on the Chemotherapy of Leprosy,
the Chemistry of Isatogens. Edited one book on the Chemotherapy of Tropical Diseases.
He acted as a referee for a number of important journals and
served on one editorial board. He has served on committees of the Council for National Academic Awards (CNAA), the
World Health Organisation
(WHO) and the Science and Engineering Research Council (SERC).
Professor Hooper is a member of a number of learned bodies, including
the Royal Chemical Society, the British Pharmacological Society and the Society for Drug Research (SDR),
now renamed the Society for
Medicines Research, where he has served on the committee for 12 years and served as Chairman for 2 years.
This involved the planning
and organising of major national and international conferences. He was appointed Chief Scientific Advisor to the
Gulf Veterans Association (GVA)
and accepted by the Ministry of Defence (MoD) as their nominee on the Independent Panel established to consider
the possible interactions between
Vaccines and NAPS tablets.
He has also served on the Gulf Support Group convened at the Royal British Legion. His involvement with the GVA brought
contact with Chronic Fatigue Syndrome/Myalegic Encephalomyelitis (CFS/M.E.) and related disorders. Gulf War Illness/Syndrome
(GWI/S) has much in common
with M.E./CFS.
He is Patron of the Sunderland and South Shields M.E. Association and a member of the Newcastle Research Group,
which includes eminent
physicians and scientists performing research in to CFS/M.E., where one recent aspect has been the identification of
organochlorine pesticide poisoning
being misdiagnosed as M.E./CFS. He has addressed meetings of the Pesticide Exchange Network and consulted to the
Organo-Phosphate Information Network (OPIN).
He worked with the Autism Research Unit (ARU) at the University of Sunderland for over 20 years, leading to involvement
in biochemical studies to offer help, support and treatment for people with autism. This has also lead to research and
urine-analysis of Indolyl-Acroyl-Glycine (IAG), which is an unusual metabolite found in excess of 90% of people
examined in different groups of GWV, M.E./CFS and Organo-Phosphate (OP) poisoning sufferers. He served on the
General Synod of the Church of England from 1970 to 1980 and he is a Christian Lay Leader, Preacher and Teacher.
He is currently involved in three environmental campaigns: Toxic waste dumping, including campaign against sewage in
the sea presenting to the Select Committee on
Sewage Treatment and Disposal GWI/S, presenting to the Defence Select Committee M.E./CFS and OP/Pesticide poisoning
Other Links
Ellen Piro
President of the Norwegian ME ForeningDay 1 - NICE Guidelines - Experiences from Norway
Ellen Piro, President of the Norwegian ME Forening
Ellen Piro is the president of the Norwegian M.E. Association. In 1995 she circulated a worldwide petition to get the CFS name changed and she personally brought it to the Dublin CFS conference to urge the scientists to make a change. Recently Ellen has been involved in the investigation into the use of meningitis vaccines in Norway and New Zealand and which has ben connected with the cases of over 250 ME patients. She has also contributed to the debate on the Norwegian equivalent of the NICE guidelines.
Dr Byron Hyde
Dr Byron HydeME AND INSURANCE COMPANIES
Dr. Byron Hyde
Dr. Byron Hyde attended the Haileybury School of Mines and worked as a geophysicist. He then did premedicine in the Faculty of Medicine and University College, University of Toronto, obtaining a degree in chemistry and nutrition. He graduated in medicine from the University of Ottawa where he was the Director and Chief of the International Exchange Program for the Canadian Association of Medical Students and Interns (CAMSI). Dr. Hyde founded the International Summer School in Tropical Medicine. He interned at Hotel Dieu in Montreal, was a resident at St. Justine Hospital in Montreal and at the Ottawa Civic Hospital. He also studied in Munich at the University Kinderklinik and in Paris at the Necker Hospital for Children.
He was a research chemist at the Roscoe B. Jackson Laboratory at Bar Harbour, Maine, a leading world laboratory in immunological research. Following this, he was Chief Technician in charge of the Electron Microscope Laboratory in Toronto at the Hospital for Sick Children, followed by a similar post at the University of British Columbia. Dr. Hyde has authored a book on Electron Microscopy and two non-medical books.
Dr. Hyde has been a physician for 25 years and has performed charitable work as a physician in Laos and the Caribbean. He held the position of Chairman of the Ottawa Community Health Services Association, and is presently Chairman of The Nightingale Research Foundation. In 1984, Dr. Hyde began the full-time study of the disease process then known as Myalgic Encephalomyelitis (renamed in 1986 by Dr. Gary Holmes in the USA to Chronic Fatigue Syndrome).
He has worked exclusively with M.E./CFS patients since 1985. In 1988, Dr. Hyde organized an association and founded The Nightingale Research Foundation, dedicated to the study of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. He has also acted as Chairman of the 1990 Cambridge Easter Symposium and of the Workshop on Canadian Research Directions for Myalgic Encephalomyelitis / Chronic fatigue Syndrome in May, 1991, at the University of British Columbia. (the above was extracted from the Nightingale Foundation.)
Other Links
Plenary Session
Questions to the speakers on Day 1 of the conference.
Annette Whittemore and Dr Dan Peterson
Interview with Professor Malcolm HooperWhittemore-Peterson Institute, Nevada, USA
Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Ellen Piro and Dr Byron Hyde
Interview with Professor Malcolm HooperDay 1 of #IIMEC2
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Dr Ian Gibson
Former Dean of Biological Sciences, UEA
Dr Ian Gibson is the former Labour MP for Norwich North. Dr Gibson worked at University of East Anglia for 32 years,
became Dean of the School of Biological Sciences at UEA in 1991
and was head of a cancer research team and set up the Francesca Gunn Leukaemia Laboratory at UEA.
In 2011 Dr Gibson received an honorary doctorate of civil law from UEA.
A scientist, politician and academic - Dr.Ian Gibson is uniquely qualified to comment on how science and politics have become intertwined.
Other Links
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References
Professor Martin Pall
Professor Martin Pall, Professor School of Molecular Biosciences WWAMI Program Washington State University
Dr. Pall has long-term interests in biological regulatory mechanisms. His current research is focussed on a theory he has developed on the cause (etiology) of chronic fatigue syndrome and the overlapping and related conditions of multiple chemical sensitivity, fibromyalgia, and posttraumatic stress disorder.
According to this theory, each of these is initiated by stresses that induce increased levels of nitric oxide and its oxidant product peroxynitrite, followed by a biochemical vicious cycle mechanism associated with chronic elevation of these two compounds. Symptoms of these conditions are produced by both nitric oxide and peroxynitrite and treatment should focus on downregulating this vicious cycle mechanism. Vitamin B-12 injections commonly used to treat these conditions are proposed to act through the action of one form of B-12 (hydroxocobalamin) which is a potent nitric oxide scavenger. Dozens of biochemical and physiological observations provide support for this theory. The most puzzling features of these conditions are explained by this novel theory.
Dr. Abhijit Chaudhuri
Dr. Abhijit ChaudhuriPathology of ME/CFS
Dr. Abhijit Chaudhuri
Dr Vance Spence
Vascular Aspects of ME/CFSDr. Vance Spence - Honorary Senior Research Fellow in the Department of Medicine,University of Dundee Medical School, UK
Dr. Spence is a graduate of the Universities of London and Dundee. He was a Principal Clinical Scientist responsible for vascular services and research and, in 1997, he rejoined the University of Dundee Medical School as Honorary Senior Research Fellow in the Department of Medicine.
Dr. Sarah Myhill
Dr. Sarah Myhill GPDay 2 - Treatments and Diagnosis – A GP’s Perspective
Dr Sarah Myhill - GP, UK
Dr. Myhill is a general practitioner with a particular interest in chronic fatigue syndrome. She qualified from Middlesex Hospital Medical School with honours in 1981 and has worked in the NHS and in private practice. Dr. Myhill has consulted over 100 farmers with CFS following organophosphate poisoning and 100 women with CFS following silicone poisoning either from breast implants or injection. Over the past twenty years Dr. Myhill estimates to have seen over 1,500 cases of chronic fatigue syndrome largely caused by viral infection. During the early years she reported these cases individually to the Medical Devices Agency.
Professor Kenny De Meirleir
Director of the Human Performance Laboratory and Fatigue Clinic, Vrije Universiteit BrusselsDay 2 - Treatments for ME/CFS Integrative & Complimentary Medicine
Professor De Meirleir is a professor of Physiology and Internal Medicine at Free University of Brussels in Belgium. He is co-editor of Chronic Fatigue Syndrome: A Biological Approach, co-editor of the Journal of Chronic Fatigue Syndrome, and reviewer for more than 10 other medical journals. Dr. De Meirleir was one of four international experts on the panel that developed the Canadian Consensus Document for ME/CFS. He assesses/treats 3,000 to 4,000 ME/CFS patients annually. Professor Kenny L. De Meirleir, MD received his medical degree at Vrije Universiteit Brussel, Magna cum laude. His research activities in Chronic Fatigue date back to 1990. His other research activities in exercise physiology, metabolism and endocrinology have led to the Solvay Prize and the NATO research award. He is director of the Human Performance Laboratory and Fatigue Clinic at the Vrije Universiteit Brussel, as well as consultant in the Division of Cardiology and director of the cardiac rehabilitation program at Vrijie Universiteit Brussel.
Dr Byron Hyde
Nightingale FoundationDay 2 - CFS patient and the resulting pathological findings or Case Studies / Thyroid Problems
Dr. Byron Hyde
Dr. Byron Hyde attended the Haileybury School of Mines and worked as a geophysicist. He then did premedicine in the Faculty of Medicine and University College, University of Toronto, obtaining a degree in chemistry and nutrition. He graduated in medicine from the University of Ottawa where he was the Director and Chief of the International Exchange Program for the Canadian Association of Medical Students and Interns (CAMSI). Dr. Hyde founded the International Summer School in Tropical Medicine. He interned at Hotel Dieu in Montreal, was a resident at St. Justine Hospital in Montreal and at the Ottawa Civic Hospital. He also studied in Munich at the University Kinderklinik and in Paris at the Necker Hospital for Children.
He was a research chemist at the Roscoe B. Jackson Laboratory at Bar Harbour, Maine, a leading world laboratory in immunological research. Following this, he was Chief Technician in charge of the Electron Microscope Laboratory in Toronto at the Hospital for Sick Children, followed by a similar post at the University of British Columbia. Dr. Hyde has authored a book on Electron Microscopy and two non-medical books.
Dr. Hyde has been a physician for 25 years and has performed charitable work as a physician in Laos and the Caribbean. He held the position of Chairman of the Ottawa Community Health Services Association, and is presently Chairman of The Nightingale Research Foundation. In 1984, Dr. Hyde began the full-time study of the disease process then known as Myalgic Encephalomyelitis (renamed in 1986 by Dr. Gary Holmes in the USA to Chronic Fatigue Syndrome).
He has worked exclusively with M.E./CFS patients since 1985. In 1988, Dr. Hyde organized an association and founded The Nightingale Research Foundation, dedicated to the study of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. He has also acted as Chairman of the 1990 Cambridge Easter Symposium and of the Workshop on Canadian Research Directions for Myalgic Encephalomyelitis / Chronic fatigue Syndrome in May, 1991, at the University of British Columbia. (the above was extracted from the Nightingale Foundation.)
Other Links
Dr Jonathan Kerr
St. George’s University of LondonDay 2 - VIRAL AND HUMAN GENE EXPRESSION, DEVELOPMENT OF DIAGNOSTIC TEST, NEWS OF CLINICAL TRIALS
Dr Jonathan Kerr
Jonathan Kerr qualified in medicine from Queen’s University of Belfast (1987), and completed training as a medical microbiologist (1995). He has worked as a microbiologist in Belfast, Manchester and London, taking up post as a Consultant Senior Lecturer in Microbiology at Royal Brompton Hospital / Imperial College in June 2001, and then Sir Joseph Hotung Clinical Senior Lecturer in Inflammation at St George’s University of London in 2005. His interest in Chronic Fatigue Syndrome (CFS) began during a study of the consequences of parvovirus B19 infection, when he showed that a percentage of infected cases developed CFS which persisted for several years. He is now the principal investigator in a programme of research in CFS. This involves development of a diagnostic test using mass spectrometry, analysis of human and viral gene expression in the white blood cells, and clinical trials of immunomodulatory drugs. Dr. Jonathan Kerr and colleagues at St. George’s University of London reported in the July 27, 2005 issue of the Journal of Clinical Pathology that a preliminary study of 25 CFS patients and 25 matched healthy controls revealed abnormalities in 35 of 9,522 genes analyzed using microarray technology. Polymerase chain reaction studies showed the same results for 16 of these genes. The study, and its results, raises some important questions. The first of which pertains to the need for funding of microbiological CFS research. He leads a group of 5 scientists at St George's.
His research on gene expression has resulted in several published papers – including evidence of 7 distinct sub types of ME/CFS.
Dr. Kerr also runs a ME/CFS research program. He studied the consequences of parvovirus B19 infection in ME/CFS and showed that a percentage of infected cases developed ME/CFS which persisted for several years. He has reported 88 human genes whose dysregulation is associated with CFS, and which can be used to derive genomic CFS subtypes which have marked differences in clinical phenotype and severity.
Other Links
Dr Dan Peterson
Biomedical Research into MEWhittemore-Peterson Institute, Nevada, USA
Dr Daniel L. Peterson, Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Daniel L. Peterson, M.D., is an internist in Incline Village, Nevada and recognized medical expert on CFS/ME. Dr. Peterson is founder of Simmaron Research, and serves on its Scientific Advisory Board. Dr. Peterson has devoted 25 years of his clinical career to diagnosing and caring for patients with CFS/ME and related neuroimmune disorders, and collaborating with researchers to better understand the illness. Dr. Petersons repository of more than 1,000 patient biological samples and records is a rich resource for research studies. His experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
With over 25 years of medical practice, Dr Daniel L. Peterson has become a sought-after internist for diagnosing difficult and complex medical cases.
When several patients in Incline Village became ill with symptoms that resembled persistent mononucleosis, Daniel Peterson was one of the first physicians to recognize an outbreak of what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a pioneering physician and researcher in understanding the biological characteristics and methods for diagnosing, managing and treating ME/CFS. He has also performed major studies of Ampligen as a treatment for ME/CFS, and studying the possible role of human herpes virus 6 (HHV-6) in CFS patients.
Dr. Peterson's experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
Other Links
Professor Malcolm Hooper
SUMMARY - FUTURE STRATEGY FOR ME RESEARCH, DIAGNOSIS AND TREATMENTEmeritus Professor of Medicinal Chemistry, University of Sunderland
Professor Malcolm Hooper
Professor Malcolm Hooper is Emeritus Professor of Medicinal Chemistry, University of Sunderland and chaired many of the initial Invest in ME Research International ME Conferences.
Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients' rights.
Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews - interviews with conference speakers at the Invest in ME Conference.
Professor Hooper graduated from University of London and had held appointments at Sunderland Technical College, Sunderland Polytechnic and the University of Sunderland,
where he was made Emeritus Professor of Medicinal Chemistry in 1993.
He has served at many UK universities as well as in India and Tanzania.
He has inaugurated links with Indian research institutions and universities and celebrated 25 years of productive
and on-going links which have,
particularly, involved the design and development of new drugs for tropical diseases and an exploration of natural
products associated with Ayurvedic medicine.
He has published some 50 papers in peer-reviewed journals in the field of medicinal chemistry together with major
reviews on the Chemotherapy of Leprosy,
the Chemistry of Isatogens. Edited one book on the Chemotherapy of Tropical Diseases.
He acted as a referee for a number of important journals and
served on one editorial board. He has served on committees of the Council for National Academic Awards (CNAA), the
World Health Organisation
(WHO) and the Science and Engineering Research Council (SERC).
Professor Hooper is a member of a number of learned bodies, including
the Royal Chemical Society, the British Pharmacological Society and the Society for Drug Research (SDR),
now renamed the Society for
Medicines Research, where he has served on the committee for 12 years and served as Chairman for 2 years.
This involved the planning
and organising of major national and international conferences. He was appointed Chief Scientific Advisor to the
Gulf Veterans Association (GVA)
and accepted by the Ministry of Defence (MoD) as their nominee on the Independent Panel established to consider
the possible interactions between
Vaccines and NAPS tablets.
He has also served on the Gulf Support Group convened at the Royal British Legion. His involvement with the GVA brought
contact with Chronic Fatigue Syndrome/Myalegic Encephalomyelitis (CFS/M.E.) and related disorders. Gulf War Illness/Syndrome
(GWI/S) has much in common
with M.E./CFS.
He is Patron of the Sunderland and South Shields M.E. Association and a member of the Newcastle Research Group,
which includes eminent
physicians and scientists performing research in to CFS/M.E., where one recent aspect has been the identification of
organochlorine pesticide poisoning
being misdiagnosed as M.E./CFS. He has addressed meetings of the Pesticide Exchange Network and consulted to the
Organo-Phosphate Information Network (OPIN).
He worked with the Autism Research Unit (ARU) at the University of Sunderland for over 20 years, leading to involvement
in biochemical studies to offer help, support and treatment for people with autism. This has also lead to research and
urine-analysis of Indolyl-Acroyl-Glycine (IAG), which is an unusual metabolite found in excess of 90% of people
examined in different groups of GWV, M.E./CFS and Organo-Phosphate (OP) poisoning sufferers. He served on the
General Synod of the Church of England from 1970 to 1980 and he is a Christian Lay Leader, Preacher and Teacher.
He is currently involved in three environmental campaigns: Toxic waste dumping, including campaign against sewage in
the sea presenting to the Select Committee on
Sewage Treatment and Disposal GWI/S, presenting to the Defence Select Committee M.E./CFS and OP/Pesticide poisoning
Other Links
IIMEC2 Day 2 Plenary Session
PANEL DISCUSSION: THE WAY FORWARD FOLLOWED BY OPEN FORUMQuestions from the audience at IIMEC2 Day 2
Questions to the speakers on Day 2 of the conference.
Interview Dr Ian Gibson MP and Sarah Vero
with Professor Malcolm HooperFollowing the Gibson Inquiry into ME
The Gibson Inquiry 2006
Dr. Ian Gibson MP for Norwich North called for an independent inquiry into Myalgic Encephalomyelitis and set up a working group.
Read more of the Inquiry into the
status of status of
CFS/M.E. and M.E. and
research into research into
causes and
treatment
- click here
Dr Nigel Speight
Paediatrics and MEDay 2 - Paediatrics and ME
Dr Nigel Speight
Dr Nigel Speight was a consultant paediatrician in Durham for over 25 years. He has seen a large number of cases of childhood ME in his own area and has frequently been called on to support cases of where children have been treated poorly by social and healthcare services. He has played a major role in rescuing children from care proceedings and is well qualified to comment on the state of treatment of ME patients. Dr Speight presented at the 2nd Invest in ME Research International ME Conference 2007 in London and gave the pre-conference dinner keynote speech at the 9th Invest in ME Research International ME COnference in 2014. He is considered to be one of the most experienced ME consultants in the UK.
Further Information
Read more of the The General Medical Council - Dr Nigel Speight
- click here
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Any person registering or attending an Invest in ME/Invest in ME Research conference, or purchasing the conference DVD or viewing the conference videos, who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner.
Invest in ME/Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained at the conference.
By purchasing any of the conference DVDs you agree that Invest in ME/Invest in ME Research is not liable for any complications, injuries, loss or other medical problems arising from, or in connection with, the use of or reliance upon any information contained in the conference.
Images from IIMEC2, London, 2007
Images from IIMEC2, London, 2013
Comments about Invest in ME Research Conferences
Just wanted to congratulate you on an excellent conference last week. It was great to see so many of the leading researchers into ME all in one room, and all pulling in the same direction.
- Delegate
I really believe all this is due to the amazing job you have been doing through the years building up this network of research excellence connected to ME patients. It is said that if a boat is not pushed it will never advance… You are definitively the best motor the ME boat could have found. Also, without patient participation, researchers can do nothing. (From BRMEC6 researcher delegate)
Thank you for again making this conference available for ordinary patients at such a reasonable price. The conference was extraordinary and brought hope to me and my family. Thank you for all you are doing.
- Delegate
Fantastic conference, many thanks for your hard work. I thought it was fantastic, massively informative, encouraging, inspiring, necessary. It was very powerful hearing so much material from the doctors, researchers and speakers themselves, very, very impressive.
- Delegate
I enjoyed it all - especially being given ideas that may be able to use in practice and to be given ideas for where to look for future research to keep updated in CFS/ME practice. I have been able to gain a better understanding of CFS/ME and diagnostic criteria and changes to it. It is also very useful to be aware of research that is going on and how practices differ in UK to USA.
- From Conference feedback form (from NHS professional)
Thank you for a wonderfully organized conference! The yearly IiME conferences have become the most important events in Europe, with the best speakers and with focus on subjects that really matters in the battle that we are all fighting.
- Delegate
The diverse background of speakers pulling together novel research reflecting similar pathological phenotypes in chronic fatigue with numerous underlying genotypes and infections
- Delegate
It was a professional and superbly run Conference.
- Delegate
This really was the best conference yet ---- WELL DONE indeed to you. Every aspect of the conference works so well and the conference is beginning to get a family feel about it giving some of us the one and only chance each year to meet up.
- Delegate
Opened new lines for looking at literature references, in order to enhance research on CFS/ME.
- Delegate
Congratulations on holding such an excellent conference on ME/CFS.
- Doctor
This was the first time I actually attended such a conference. I was very impressed.
It is encouraging to see how much research is taking place and how many great medical professionals are making towards diagnosis and more recognition. Having relatives with ME feels much like a solitary experience and it is good to come to an event where there are people who are experiencing the same thing.
- Delegate
Very good organisation of the event, wide variety of speakers and materials.
You are doing incredible work. The whole event was absolutely brilliant.
- Delegate
You are certainly running things efficiently and well and are to be congratulated on arranging and managing this excellent conference!
- Delegate
the conference was extremely well attended - in terms of feedback it was re-assuring to hear that the academics are making clearer connections and encouraging the clinicians to think about the implications of these variables when treating patients.
SIIMEC4 clinician delegate
As voiced by many on the day, it seems a shame that the desperately needed tests and measures to confirm possible onset are not readily available and possibly the reason why there still remains a very" them and us" culture in the UK. The breaks and the opportunity to discuss patients individual experiences was also invaluable- I even came away with details of tried and tested interventions, which I will definitely pass on to my patients.
SIIMEC4 clinician delegate
Just wanted to congratulate you on an excellent conference last week. It was great to see so many of the leading researchers into ME all in one room, and all pulling in the same direction.
- Delegate
We would like to convey our sincerest gratitude to Invest in ME for organising such a fantastic conference. Without people like you, we and many, many others would be lost. Thank you for caring and for wanting to make a difference in the lives of suffering people. You all deserve a medal!.
JIIMEC3 delegate
Fantastic! The best ME conference I have been to and thanks to Invest in ME for making the price so realistic for pwme. I learned so much from this day. Keep up the good work.
HIIMEC3 delegate
To all at IiME Thank you so much for another fantastic conference. It was a joy and a relief to be able to listen to people who are starting to understand the biomedical complexities of this condition. Some extremely interesting speakers this year. We have to keep pushing and pushing. It goes without saying that your hard work is greatly appreciated.
RIIMEC3 delegate
Dr. Gibson spoke openly with regards to the inquiry into M.E. I hope that his report will reflect the true biomedical nature of M.E. Finally, may I say “Thank you” to the team members who were in charge of ordering, packaging and posting the DVD parcels. This must have been a mammoth task in itself!.
DoctorIIMEC1 delegate
Having watched the DVD I am so glad that there are still medical, charity and research professionals who are genuinely committed to helping ill patients. It is so refreshing to learn that doctors such as Bruce Carruthers and Byron Hyde still exist in our modern “evidence based” medical world. These doctors believe in listening to their patients and investigating their symptoms. They do not write patients off.
PatientIIMEC1 participant
Thank goodness for researchers such as Professor Hooper, Professor Puri and Dr. Kerr who have had the strength of character to persevere and continue to research M.E, an illness which has been denigrated by so many other researchers.
PatientIIMEC1 participant
Dear IiME, Thank you all for the hard work that went into making the ME Conference 2006 such a success. It was a huge undertaking and I am just so pleased that it was a success. I have just finished watching the conference on DVD for the second time and it was just like being part of the audience. The DVD recording equally professional.
PatientIIMEC1 participant
The ME experts were excellent and able to speak to their audience in an informative and enjoyable manner. What struck me most about all the speakers was their genuine commitment to their patients, research or charity work. Although all working in slightly different areas, they all share one common bond…..working towards finding the cause and cure for M.E.
PatientIIMEC1 participant
I watched the ME Conference DVD at the weekend. I have to confess that I cried all through the first DVD. Living with ME, you get so used to putting up with ignorance and misunderstanding, and so to hear a group of people gathered together in one room talking about ME sensibly, was just totally overwhelming. I can't thank you and everybody else enough for organising this event and for all the other work that you do.
ABIIMEC1 delegate
Thank you for again making this conference available for ordinary patients at such a reasonable price. The conference was extraordinary and brought hope to me and my family. Thank you for all you are doing.
- Delegate
Fantastic conference, many thanks for your hard work. I thought it was fantastic, massively informative, encouraging, inspiring, necessary. It was very powerful hearing so much material from the doctors, researchers and speakers themselves, very, very impressive.
- Delegate
I enjoyed it all - especially being given ideas that may be able to use in practice and to be given ideas for where to look for future research to keep updated in CFS/ME practice. I have been able to gain a better understanding of CFS/ME and diagnostic criteria and changes to it. It is also very useful to be aware of research that is going on and how practices differ in UK to USA.
- From Conference feedback form (from NHS professional)
Thank you for a wonderfully organized conference! The yearly IiME conferences have become the most important events in Europe, with the best speakers and with focus on subjects that really matters in the battle that we are all fighting.
- Delegate
Thank you for again making this conference available for ordinary patients at such a reasonable price. The conference was extraordinary and brought hope to me and my family. Thank you for all you are doing.
- Delegate
Fantastic conference, many thanks for your hard work. I thought it was fantastic, massively informative, encouraging, inspiring, necessary. It was very powerful hearing so much material from the doctors, researchers and speakers themselves, very, very impressive.
- Delegate
Thank you for a wonderfully organized conference! The yearly IiME conferences have become the most important events in Europe, with the best speakers and with focus on subjects that really matters in the battle that we are all fighting.
- Delegate
The diverse background of speakers pulling together novel research reflecting similar pathological phenotypes in chronic fatigue with numerous underlying genotypes and infections
- Delegate
It was a professional and superbly run Conference.
- Delegate
This really was the best conference yet ---- WELL DONE indeed to you. Every aspect of the conference works so well and the conference is beginning to get a family feel about it giving some of us the one and only chance each year to meet up.
- Delegate
Opened new lines for looking at literature references, in order to enhance research on CFS/ME.
- Delegate
Congratulations on holding such an excellent conference on ME/CFS.
- Doctor
This was the first time I actually attended such a conference. I was very impressed.
It is encouraging to see how much research is taking place and how many great medical professionals are making towards diagnosis and more recognition. Having relatives with ME feels much like a solitary experience and it is good to come to an event where there are people who are experiencing the same thing.
- Delegate
Very good organisation of the event, wide variety of speakers and materials.
You are doing incredible work. The whole event was absolutely brilliant.
- Delegate
You are certainly running things efficiently and well and are to be congratulated on arranging and managing this excellent conference!
- Delegate
An amazing achievement to produce all of these presentations of the conference. I found it so informative and you have performed an incredible task in doing all of this.
PatientIIMEC1 delegate
I thoroughly enjoyed the conference and learnt a great deal, as well as brushing up my rather rusty immunology! I thought that the standard of the presentations was extremely high across the board, and covered a band of relevant and applicable topics; I shall certainly be attending next year’s conference if at all possible.
PatientIIMEC1 participant
The content is rivetting..especially being a physio/ mum of ME child, regarding the evidence behind exercise.
Professional/CarerIIMEC1 participant
Thank you so much for the wonderful Conference last Friday. I came away feeling more positive about the future for people with ME (my two children aged 17 and 13 have been diagnosed with it) than I have since they became ill.
GillIIMEC1 delegate
I attended the conference last Friday and had a great time – I enjoyed the event a great deal and felt that it was a huge success – you should be very pleased.' 'Many thanks for your help and many congratulations again on an excellent event.
DaveIIMEC1 delegate
The conference was so fantastic. I now feel fully armed to battle in ignorance about this disease in Denmark. How can any doctor look at the facts and doubt it is a physical disease. And yet...there was a least one doctor there who still was a Wessley-schooler. On the second day, I sat next to this man and when I told him I had ME/CFS he told me to try deep breathing techniques and asked me if I was a person who had a lot of self-doubt...... so...you can lead a fool to facts, but you can't make them think! Thanks again for all the effort that went into this conference.
RIIMEC2 delegate
I found the conference to be quite a revelation. I had no idea how bad the political situation is with ME. It has galvanised me into action, with writing to my MP and a comprehensive and vigorous defence of Dr Myhill. And I'm going to the Edinburgh Conference too. Thank you so much for the enormous undertaking you have embarked on. I shall be doing all I can to support you all.
NIIMEC2 delegate
I was delighted to see in attendance also my consultant and two of his staff which I think was vital for him to gain a better understanding about severe ME. I was especially pleased of the video that was shown really showing severe ME as this I think gave a very moving account of what it was to be in that position and would of had a huge impact on those watching it. Once again thanks for an exciting conference with excellent speakers. I shall look forward to the DVD.
TIIMEC4 delegate
Thank you SO MUCH for all your great work. And we are so glad you are doing the conference DVD's again this year, last years were a great resource of info and encouraging. I've just downloaded your first journal and will read it, slowly!!, with great interest. Will also tell others of the journal and the conference DVD's in the hope that they will buy them too.
SIIMEC2 delegate
I thought it was a great conference. I met many new people, but I also missed seeing many of those involved in the new CFS/ME services.
NIIMEC2 delegate
Many thanks for the wonderful conference. It was a great atmosphere and very uplifting to know of the wonderful work and people involved in helping us ME Sufferers. Back you all the way, and hope you will all recover soon from the tremendous effort you put in on our behalf and those of the researchers. It was a conference of excellence and it honoured us as well as raising us up!
JIIMEC2 delegate
Congratulations on your second successful ME/CFS Conference. I am so pleased that there will be a DVD of the conference. I am looking forward to watching it and finding out about the latest scientific research and facts on ME. I have just downloaded the first IiME Journal. It is very informative and professionally presented. I would like to say, "Thank you IiME," for all your hard work.
CIIMEC2 delegate
Dear Invest in ME Just wanted to congratulate you on an excellent conference last week. It was great to see so many of the leading researchers into ME all in one room, and all pulling in the same direction. So thank you for all your efforts in making the conference happen, it's very much appreciated.
CIIMEC2 delegate
Thank you so much to make that big event come true. I have a slight idea how much you worked to get the conference to such a success, to organise everything so perfectly and to bring together so many scientists and practitioners to tell us about their work and their progress in research and treatment.
RIIMEC2 delegate
I'm sure this event will bring us together more closely, and only as an international community we will be strong enough to change things for the better. So I'm sure that not only those who were so lucky to attend the conference are very grateful to you but all the hundreds of patients who were not able to come but will profit from its results.
RIIMEC2 delegate
Those were two great days full of extraordinary lectures, positive information and so many important contacts! I profited so much, I learned so much, I've met so many people I haven't met before - including you -, all this was so impressive. It will take me some weeks to process all the information I got which I will pass it on to the German spoken CFS/ME community. Thank you from Germany
RIIMEC2 delegate
Congratulations to everyone involved for a very successful Conference last week. Both days were interesting, fascinating, useful, well run and uplifting.....Thank you very very very much to everyone for all the work you are doing for people with M.E.
PIIMEC2 delegate
Just saw on your website that you did get a DVD done in the end - my massive thanks to everyone, there's a whole load of people out there who appreciate the work you're doing!
MIIMEC2 delegate
"Thank you to the organisers and speakers for a very interesting and stimulating meeting."
BIIMEC2 delegate
"Just wanted to say thanks for organising a conference with such impressive speakers & at such reasonable cost. As a humble parent, most conferences are completely out of my price range, so was really delighted to be able to attend. I picked up lots of info & have realised that I need to do loads more h/w to really be on top of all the stuff that’s been discovered since my daughter first became ill – 10 yrs ago."
HIIMEC2 delegate
"Congratulations on the Conference, it was very well organised with some excellent speakers. I was very pleased to see a number of our local CFS team present at the conference
AIIMEC2 delegate
"I am interested in the DVD & thank you all again for a great conference"
PIIMEC2 delegate
I enjoyed participating enormously and think the whole conference was a great success. Well done!
Dr NIIMEC2 delegate
"You are certainly running things efficiently and well and are to be congratulated on arranging and managing this second excellent conference! I am only just recovering from the efforts of attending the 2 day event and was about to send you a note of thanks for all your efforts and succeeding in facilitating a truly remarkable conference. It was great to see so many familiar faces, both amongst the audience and the presenters, and as you rightly say, the information conveyed was amazing and exciting. H aving said that - so much was known sooooo many years ago already! -
DIIMEC2 delegate
Perhaps two of the most important new developments were those reported by Ellen Piro on what has happened in Norway, and the new Clinic in Nevada reported on by Annette Whittemore and Daniel Peterson - they are very lucky in both instances! Thank you all again for all your hard work and all the trouble you have gone to in organizing, arranging and managing this remarkable event. Such conferences should have been arranged by the major UK ME/CFS charities long ago - Byron Hyde arranged the 1990 Cambridge event.
DIIMEC2 delegate
"I have come back home determined to help your cause. I am working on a plan to get the Local Press interested in doing a big piece on M.E. in our paper which is read by a very high percentage of people living in Guernsey - hopefully during May. My idea at the moment is to say that I have attended the Conference in London and have come back inspired and elaborate on what you have achieved.
JIIMEC2 delegate
You are a Great Team and deserve to be encouraged in every way possible. You are doing such a fantastic job. Oh boy, do these poor patients need encouragement!!!!! I happen to be one of the lucky ones and that is why I am happy to join in to help fight for those far less fortunate and with little support."
JIIMEC2 delegate
Fantastic conference, many thanks for your hard work. I thought it was fantastic, massively informative, encouraging, inspiring, necessary. It was very powerful hearing so much material from the doctors, researchers and speakers themselves, very, very impressive. I do agree that the speakers all came across as deeply humane. As a patient there was an enormous amount of useful applicable material and info on research hot from the lab so to speak.
NIIMEC2 delegate
Thanks for enquiring if I was OK, was only disorientated due to multiprocessing mayhem, which is worst symptom. A very good venue too, I noticed others remarked on what a pleasant environment, the term 'the organisers did us proud' came to mind. I've been thinking about it all day, as these are serious times requiring strategies. Thanks again, it was brilliant, you must be knackered. A brilliant effort, weight in gold.
NIIMEC2 delegate
"Just to say well done for once again organising such a great conference with brilliant, knowledgeable and dedicated speakers! We are moving forward!!"
LIIMEC2 delegate
To all the wonderful people who helped organising the ME Conference in May 2007!! Just a short note to say Thank you very much for all the hours that you must have spend to give us the opportunity to attend the Conference.
PIIMEC2 delegate
The conference was excellent!
JIIMEC3 delegate
The conference was great and it was really a good feeling to be among others who are working for the same aim. It was also great to see and to hear all these medical researchers who are able to explain at least a good part of this illness and to have the occasion to speak to them.
MIIMEC3 delegate
Well done for yet another excellent conference, keep up the good work.
JIIMEC2 delegate
I attended the second day - an excellent conference - many thanks.
MIIMEC2 delegate
It was a great pleasure to met up with you all again in London this week and congratulations must once more be extended on your terrific organisational talents in getting the job done. As well as the huge flow of information gained from the lectures (OK - some of it went over our heads), WE found it very beneficial to be able to meet with the important players in the ME world, those we were already acquainted with and some we weren't.
DIIMEC2 delegate
Hello To all the hard workers who made this conference come to fruition, you did a splendid job, and you so were so very kind to me, and that means so much to a ME sufferer, when back in my own environment you are looked on as a malinger, and probably have psychological problems. Well, I shall battle on undaunted spreading words and literature the best I can. A big thank you to all of you.
SIIMEC2 delegate
You organised the most impressive conference. I learnt so much and am very grateful to you.
IIMEC4 delegate
Thanks once again for such a wonderful Conference in London, the best I´ve ever seen.
JIIMEC4 delegate
Thank you for a great day in London, the 29 of May. It was an interesting conference.
IIIMEC4 delegate
Thank you for a really excellent conference. I particularly found Dr Nicolson's presentation helpful to bring all the strands together.
RIIMEC4 delegate
I would just like to thank you for putting on a wonderful conference full of excellent speakers and a wealth of information regarding severe ME. I consider myself to be one of those severe sufferers that you were highlighting this year and I also have a fiancee at home who also has severe ME for the last 20 years, so I am grateful to Invest in ME for bringing it to the attention of a wider audience.
TIIMEC4 delegate
Thank you for a wonderfully organized conference! The yearly IiME conferences have become the most important events in Europe, with the best speakers and with focus on subjects that really matters in the battle that we are all fighting.
EIIMEC4 delegate
the conference was top !!!.
AIIMEC4 delegate
Thank you for your excellent organization of the conference and for looking after me while juggling a thousand other details.
MIIMEC4 delegate
an excellent meeting
DelegateBRMEC6/IIMEC11
It was a wonderful series of meetings
DelegateBRMEC6/IIMEC11
The conference was fabulous.
DelegateIIMEC11
Am still reeling from such a wonderful conference and colloquium
DelegateBRMEC6/IIMEC11
.. terrific meeting. It gets better year by year
DelegateBRMEC6/IIMEC11
Thanks again to you for organizing this important meeting. I think that there are going to be more far-reaching effects than before
DelegateBRMEC6/IIMEC11
Thank you very much for all your efforts for the success of this event.
DelegateBRMEC6/IIMEC11
..enjoyed the conference and I look forward to reporting exciting progress with our collaboration...
DelegateBRMEC6/IIMEC11
thank you, once more, for the excellent organization of BRMEC6 and IIMEC11. ... just amazed of the good care you have taken in every single detail so that absolutely all would come up perfect. This year I specially felt researchers connected and ready to advance faster by collaborating. Also, I felt ME patients are much more encouraged. I really believe all this is due to the amazing job you have been doing through the years building up this network of research excellence connected to ME patients.
DelegateBRMEC6/IIMEC11
the conference was excellent.
DelegateIIMEC11
thanks for another great conference, I hope you know your considerable efforts are appreciated by a lot of patients, who are unable to respond effectively.
DelegateIIMEC11
Thank you for a wonderful conference in London last week!
DelegateIIMEC11
thank you for a wonderful colloquium and conference. The research is getting so exciting! You must have worked so hard to get it all together.
DelegateBRMEC7/IIMEC12
wanted to thank you as well for another excellent conference
DelegateBRMEC7/IIMEC12
I was extremely impressed by the colloquium/conference and by the obvious extensive work you put down! This disease is so devastating.
DelegateBRMEC7/IIMEC12
It is always an honor to be able to participate and present at the top CFS ME meeting in the world
DelegateBRMEC7/IIMEC12
Thank you once again for your superb organization of the IIMER events – I had such a great time and was grateful to participate.
DelegateBRMEC7/IIMEC12
Thanks for another wonderful ME colloquium and conference. Everyone thought it was all the best ever.
DelegateBRMEC7/IIMEC12
I just wanted to say how much we enjoyed the conference and learnt so much from the participants
DelegateIIMEC12
Thank you so much for a very interesting colloquium and conference! I learnt a lot and met many dedicated people.
DelegateIIMEC12
Thank you for an excellent conference.
DelegateBRMEC7/IIMEC12
it was my honor to join all of you at the conference, and I am so excited by the progress in the last year.
DelegateBRMEC7/IIMEC12
You and all of your volunteers are to be commended for what you have done to move the research forward
DelegateBRMEC7/IIMEC12
The conference was incredible and one can't help listening to the presentations that the next few years are going to bring so many new and impactful discoveries.
DelegateBRMEC7/IIMEC12
Amazing meeting.
DelegateBRMEC7
I send you and your team my heartfelt thanks for the last two days.
DelegateIIMEC12
I would like to thank you for the great meeting!
DelegateBRMEC7
Thanks for a very interesting conference!
DelegateIIMEC12
Thanks for a very interesting conference!
DelegateIIMEC12
I will definitely come next year.
Thank you for all you are doing to enhance research into this terrible disease.
DelegateIIMEC12
An excellent conference with amazing insights to the research being undertaken in ME.
DelegateIIMEC12
I thoroughly enjoyed the opportunity and found it very useful.
DelegateBRMEC8/IIMEC13
Thoroughly enjoyed it.
The best ME/CFS meeting I have been to by a long way. Some real science now coming out of this field.
DelegateBRMEC8
I think your meetings are the best opportunity for networking outside the US.
DelegateBRMEC8/IIMEC13
I want to thank you for organizing this fantastic conference, every year. It is very helpful and contributes to clarify more about ME, not just by sharing researche performed in different countries but also the conversations had with ill people, relatives and carers during breaks. Lunch time gives clinical doctors, a lot of information to understand our day in and out with our ME patients in our clinics.
DelegateIIMEC13
Thank you also for the post conference dinner, I met with a lot of people, we shared experiences and finally we all learned and felt less lonely, with hope to change things, and I could share emails and phone numbers with other doctors and patients to keep in touch.
DelegateIIMEC13
Thank you very much to you and all the trustees for another excellent conference
DelegateIIMEC13
I really would like to thank you for inviting me at the Colloquium/Conference. It was a great experience to be part of such an amazing group. The work you are doing for the community is beyond words.
DelegateBRMEC8/IIMEC13
still taking in all the knowledge we gained in London. My sincere thanks to you for staging an important event
DelegateBRMEC8/IIMEC13
thank you, for the geat effort you put every year into this wonderful meeting
DelegateBRMEC8
Thank you for inviting me to this excellent meeting, this year was for me the most interesting so far.
ResearcherBRMEC5/IIMEC10 delegate
Very inspiring as usual.
ResearcherBRMEC5/IIMEC10 participant
Congratulations for organizing such an outstanding conference! I learned a great deal
ResearcherBRMEC5/IIMEC10 participant
Another well-done conference series!
ResearcherBRMEC5/IIMEC10 delegate
Thank you so much for the invitation to attend the conferences last week. They were both very well organized and the quality was fantastic.
ResearcherBRMEC5/IIMEC10 delegate
Thank you for a wonderful meeting in London last week. I hope you know how much we appreciate being a part of this "familiy". And yes - I agree that we are on our way to real and convincing progress.
ResearcherBRMEC5/IIMEC10 partiicpant
Thank you for a fantastic conference. A very special feeling when you sit in the auditorium filled with engaged interested ME persons - so great and important that you can travel back to your (own) country and feel that after all it DOES matter what we all do in our daily ME-work.
Patient Group RepresentativeIIMEC10 delegate
I wanted to thank you for another wonderful conference
Patient CarerIIMEC10 delegate
It’s always an inspiration to meet in London. We will be back next year.
DelegateIIMEC13
Thank you for organising such a wonderful colloquium and conference in London and for giving me the opportunity to attend. It was extremely interesting and great to hear about all of the research that is being undertaken in ME.
DelegateBRMEC8/IIMEC13
Just wanted to say well done on another great conference. It was my second year of attending and it’s such an informative and uplifting experience as a patient. So positive to know that there are such talented scientists who care enough to be working hard to figure it all out.
Invest in ME Research do such a great job getting everyone together and long may that continue because boy do we need you.
DelegateIIMEC13
thank you so much for a very interesting and meaningful week in London
DelegateBRMEC8/IIMEC13
An Overview of 15 Years of IiMER Conferences
Our Sponsors for IIMEC2
Invest in ME wish to thank the following organisations for again helping us in sponsoring a speaker for the 2nd Invest in ME International ME Conference 2007.
