News from Invest in ME Research

A clinic for patients with ME/CFS and long-Covid has been established in Iceland that will serve patients nationwide.

The charity has announced planned dates for the International ME Conference Week events in 2025

Journal of IiMER for conference week

WHO Europe provide a supporting video for people with ME and for delegates to the International ME Conference Weeke events in UK in June.

Final meeting of the Department of Health and Social Care (DHSC) / UK Clinical Research Collaboration ME/CFS Research Working Group (RWG)

Systems Biology, AI and Precision Medicine in Research into ME at International ME Conference Week in June

Augmenting research into ME - New Presenters in International ME Conference Week in June

Treating People with ME - New Presenters in International ME Conference Week

12 May International ME Awareness Day message from IiMER - What has changed?

Another parliament debate is set to take place on 1 May - no details

The results of our EMEA Pan-European ME Patient Survey has been published painting a start picture of treatment and perception of ME in Europe.
EMEA has issued a press release and comment on the findings.

The charity’s name is Invest in ME Research – a constant in our mission and a name that more and more are now finally adopting, and it is no longer a slogan as the charity has brought forward major change through its vision of creating the necessary building blocks for making progress in me research, urgently.

Registration for the IIMEC16 conference on 28 June 2024 is now open. Chairman's Welcome Message
Early bird rates apply for a limited period.
Read the Chairman's welcome message.'

The 13th International Biomedical Research into ME Colloquium takes place at the Wellcome Genome Campus, UK, in June - #BRMEC13.

Comment from UK charity Invest in ME Research (IiMER) on the Draft Interim Delivery Plan on ME/CFS recently published by DHSC.

When we talk of research into ME then we need to ensure the best and standardised tools are available - for diagnosis and for measuring outcomes.
A new standard for outcome measure has been created and here is the description in preprint.
IiMER suggested to Professor Sommerfelt that FUNCAP, developed by him and Trude Schei, could be used in the research at the centre in Norwich - and so this EMERG collaboration began and this document is a culmination of that and this will be used in the research at Quadram Institute and, we hope, in other EMERG member institutes.

Studying Gut Viruses in ME and Their Role in Faecal Microbiota Transplant.
Rik Haagman's update on his research and his recent tour to our friends in Norway.

In 2019 we published our little booklet - WE - a Community and ME and included a slide for a 5 year plan. Now updated.

New members of EMERG are announced and an update on the EMERG application for high burden, under-researched diseases - ME

Dates for planned events in International ME Conference Week 2024

A survey for people with ME conducted by Spanish researchers in EMERG.

News of a planned feasibility study funded by IiMER

A short summary of the International ME Conference Week 2023

IIMEC15 Colloquium Awarded maximum CPD Points

BRMEC12 Colloquium Awarded CPD Points

For this year’s international ME conference week events we welcome several researchers who are attending the IiMER events for the first time.

The charity and EMERG announce the resumption of the European young/early career researcher network - EMERGecr or Young EMERG.
An additional event is now planned for International ME Conference Week for the group to meet, along with early career investigators from other countries and continents.

A full EMERG meeting will take place prior to the 12th Invest in ME Research Biomedical Research into ME Colloquium at the Wellcome Genome Campus in UK in May.

EMERG will have new participants who will also be joining the meeting.

Dr Katharine Seton has been selected to be amongst the finalists in the STEM awards for Britain in the UK parliament.

Investigating Immune Reactivity to the Intestinal Microbiome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - abstract of thesis of Dr Katharine Seton

Registration is now open for the 15th Invest in ME Research International ME Conference 2023

IiMER Fellow provides expert comments on SMC Press Release on gut microbiome

More thoughts on investing in the future

The first Fellowship for ME - in Norwich Research Park

Invest in ME Research is now on Mastodon.
Use the mastodon handle @invest_in_me_research@mas.to

Investigating Immune Reactivity to the Intestinal Microbiome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
Dr Katharine Seton provides an update on IiMER-funded research at Quadram Institute

Autumn Fundraising for IiMER.
Some of the fundraising activities for Invest in ME Research that have been ongoing.

No Longer a Slogan - Now a Reality
More investment at the centre in Norwich Research Park is enabling more capability and more capacity in a collaborative way

More input submitted by Professor Simon Carding to the next UKCRC Research Working Group meeting held on 14 October 2022.
We have added some comments from the charity.

The input submitted by Invest in ME Research to the UKCRC Research Working Group meeting held on 1 September 2022.
This was not given to the working group before the meeting - so we have provided it here.

A new page for an overview of the interaction with the Department of Health's Clinical Research Collaboration (UKCRC)

We have updated the Centre of Excellence Executive Summary for MPs document with some small changes
Feel free to distribute

No Longer a Slogan - Now a Reality

An announcement from the Secretary of State for Health on ME - some observations

ME awareness month message from IiMER

Some of the efforts being made by supporters during recent months.

Research blog: Update on IiMER-funded Research

It is one year since Dr Ian Gibson passed away.

Mike Harley has entered the final stage of his marathon adventure - supporting the charity and people with ME

A virtual roundtable organised by the European ME Alliance and the European Federation of Neurological Alliances has been arranged for 8 April 2022 - to discuss issues, educate and find solutions.

The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic and the situation in Europe. However, the agenda is filling up with new ideas and news of research from around the world. This year a theme throught the Colloquium is - ME and Long Covid: Emerging insights in mechanisms and complexity of post-viral fatigue. Once again the European ME Research Group (EMERG) will be leading the agenda.

Remembering Anne Örtegren 2022 - Has Anything Changed?

NICE has finally published the updated guidelines for ME after over two months of unnecessary delays - taking us forward to 2007.

In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield research

Comparison of PCR versus PCR-Free DNA Library Preparation for Characterising the Human Faecal Virome

The passing of Graham McPhee

A reply from the NICE CEO to IiMER's letters - and IiMER's response

Nobody should legitimise further manipulation of guidelines for ME.

It is time for people with ME to step away from this recent shambles of a process - unless everything can become open and transparent and accessible to all.

A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.

Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.

It has been fourteen years since NICE guidelines were published. A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.

A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME

EMEA has published the video of the recent webinar roundtable meeting with all presentations from the event.

2021 Royal Parks Half Marathon

IiMER Supporters Win £1,000 in Movement for Good Award

Awareness of Invest in ME Research Awareness Activities

Sad news at the passing of Dr Ian Gibson

ME Awareness leaflets for the charity.

Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.

EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.

The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic

Research blog: Update on IiMER-funded Research from Rik Haagman

Remembering Anne Örtegren

Invest in ME Research assessed the NICE Draft Guidelines published in November 2020

Persistence Pays - NICE Accede to IiMER Request to Add Addendum to Guidelines - Sort Of

The charity responds to the NICE press release regarding new draft guidelines

The charity responds to the NICE press release regarding new draft guidelines

More on the award for Biomedical Research into ME in Norwich Research Park

UK Charity Awards Funding for Research into ME in Norwich Research Park

Contradictions of NICE Policy Toward ME

IiMER Supporters Win £1,000 in Movement for Good Award

European Research Development to make progress in ME

Covid-19 and ME

ME Conference Week 2020 News Update - Covid-19

An intent to develop further the European infrastructure for ME

An International Clinicians Workshop is a new event to improve clinical knowledge.

Invest in ME Research and The Quadram Institute are arranging a Public Engagement Event in Norwich

UK Charity Pledges £500,000 for Research into ME in Norwich Research Park

The charity has produced a simple guide to the issues in the community for patients with ME.

In order to continue to build these foundations two workshops have been organised by Invest in ME Research for November.

iMER are arranging a public meeting in Norwich during Norwich Science Festival Week to publicise some of the initiatives occurring.

A new meeting of EMERG will take place in the autumn with new researchers and new ideas.

The line-up for #TEAMIiMER in the Royal Parks Half Marathon in London in October 2019.

The video of the IIMEC14 Anne Örtegren Memorial Lecture with Professor Stuart Bevan is now available.

The video of the IIMEC14 Pre-Conference Dinner Presentation by Dr Ian Gibson is now available.

Plans formulated with Invest in ME Research to make real progress in research into ME.

iMER Supporters Win £3,000 in #charity acclamation award

IiMER Supporters Win £1,000 in Movement for Good Award

IiMER Comment: Representing IiMER Dr Daniel Vipond travels to Washington for the NIH events

IiMER Comment: A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

Invest in ME Research participants in the Royal Parks Half Marathon in London in October.

Invest in ME Research recently provided a presentation for the Stryn, Norway conference on ME.

Invest in ME Research created the Thinking the Future network to encourage young and early career researchers into ME. We are taking it further as we work with USA National Institues of Health.

Danish parliament separates ME G93.3 from Functional Disorders

Sad news of a friend of IiMER and a friend of people with ME

A 32 page document giving details of issues with ME for the forthcoming UK parliamentary debate

Invest in ME Research has arranged an inaugural meeting of leading European clinicians who are involved in treating people with Myalgic Encephalomyelitis. EMECC will play a role in Colloquium and Conference.

A very useful paper just published by Timbol and Baraniuk discusses Emergency Department visits by ME/CFS patients.

Remembering the influence of Anne Örtegren